This week my husband became very ill. Immediately, we were afraid of Covid-19, of course. I was frantic with worry since I’d spent the previous day with my small granddaughters. I laid awake at night imagining everyone that could be adversely affected by our plight— like a row of dominos.
My husband was so sick that I needed to make arrangements for him. I went on the Cleveland Clinic website and found multiple options that were unclear and confusing. (Why isn’t there just one phone number to call?) Getting an appointment with your primary care physician appears to be almost impossible now. Only virtual and phone visits are offered.
I sent an email to his doctor, and later in the day a nurse called. My husband was answering her questions for 15-20 minutes. Mind you, he had fever, chills, headache, dizziness, lack of appetite, and fatigue, and that didn’t appear to be enough to warrant a Covid-19 test. If he was offered a test it would take 5-7 business days for a result.
What could happen in 5-7 business days? He could deteriorate and need hospitalization, he could have something else being untreated, I could be careless and spread it to someone else since surely I had been exposed (I had kissed him goodbye that morning), we would not be able to inform people we’d been near if they were exposed and they could possibly spread it as well. See the problems here? It also makes sense to me that if someone appears to have Covid-19 that the people they live with should be able to be tested as well. That’s definitely not going to happen.
Meanwhile, his company let him know they were under contract with a laboratory that could do the test the next day. I drove him 30 minutes to the laboratory the next morning. After a lot of paperwork, waiting, and questions, they gave him the nasal swab. The results would be 5-7 days as well. We left, but while on the highway they called and said they’d just noticed where he worked and that he could get the saliva test and receive results in 1-2 days. We drove back and were then informed that neither the company or our insurance would cover the $225 test. We looked at each other and agreed it would be worth it to find out sooner. I said, “How lucky we are that we can afford it—unlike most people in this country.”
A day and a half later we learned that his test was negative. While I was relieved and grateful, he was still very sick and had spent four days not being treated for anything. I had spent a lot of time trying to navigate all the different options and talking to family members about the situation. People were calling, giving advice and showing concern. Why? Because this pandemic has consumed our lives—all of our lives. Even if we have not had a loved one sick or die from it, we live with the stress and fear everyday.
So now my husband has spent four days not being treated for anything and he’s still very ill. I spent another frustrating hour on the phone trying to get help from a doctor or get lab tests ordered. After 15 minutes of questions I was mysteriously cut off from the appointment person on the other end of the phone. I had to start all over with an email that may or may not be seen by the end of the day. A nurse called and I went over all his symptoms again. She had to get the doctor to order lab tests so she had to call back. She did and also arranged a Zoom meeting with a physician (not his). Later, I took him to get lab tests that took 30 minutes of waiting even with an appointment.
He received another call before the Zoom meeting to repeat all the information once again. The nurse wanted him to take his temperature and blood pressure (we have a BP machine). When he got on the virtual meeting with a doctor they chatted for two minutes and the connection went dead. She called back and it was another 15 minutes until she said there was really nothing she could do for him—he could go to an urgent care. Really? What would they do? My husband said it had all been a waste of time and she laughed.
I used to feel sad about all of this, but now I just feel angry. A government exists to protect and guide its citizens in times of crisis and the current administration has failed us in every way. Eliminating a pandemic team in 2018 was only the first mistake. When a new one was formed under the vice president their only tact seemed to be to push off the responsibility on the state governors. What do governors know about pandemics and viruses? Nothing. It’s laughable to think that a virus can distinguish state borders and somehow each governor will do the right thing. Experts were our only hope and they continue to be disparaged and ignored.
We all know the “hoax,” the “downplaying,” the political division. We’ve all heard about former White House officials who’ve said the president doesn’t care about the 200K Americans dead. I blame him for this disaster. It has affected every part of our lives and there is no end in sight. Even one of the best hospital systems in America can’t get it together, in my opinion. You cannot even see a doctor when you are sick now. The nurse told me he should be “seen” by a doctor, but that meant over a computer screen. I guess they have to save themselves. Many reports say people are not even trying to get medical help because they don't want to deal with all of this or enter a facility.
Then my husband found out that the saliva test was not accepted by his place of business. So were we scammed out of $225? When the nasal test comes back it will go to his doctor, which will send it to his company before he can go back to work. He already missed two weeks of work because someone he worked with had symptoms and exposed co-workers anyway. I, too, had to stay home for two weeks that time, of course.
Well, that’s just one tiny story in a million of much bigger tragedies and losses. Just remember that because of this out-of-control virus you may not even get medical attention when you need it—so take care of yourself.
